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19 March 2008 @ 10:54 am
Dear Friends and Family,

I have decided to participate in the Annapolis MS Walk again and I'm inviting you to join Team Wench for our EIGHTH year at this event!

As you probably know, Team Wench, Inc. is a Renaissance-themed organization which believes that a small group of individuals can make a difference by pooling their talents and resources. By joining our team for this event, you will be signing up not just for a day of fun, family, and friends, but also for a celebration of the great things we can achieve when working together for a common cause!!

Each step we take brings us one step closer to a cure - and closer to a world without multiple sclerosis. So what are you waiting for? Join our team today or make a donation on my behalf.

P.S. If you would like more information about the National Multiple Sclerosis Society, how proceeds from the walk MS are used, or the other ways you can get involved in the fight against MS, please visit http://www.nmss-md.org/ or call 443-641-1200.

P.P.S. If you would like more information about Team Wench, our upcoming MS Fantasy Ball, or any of our other events, please see http://www.teamwench.org/ or just ask!

Click here to visit my personal page.
If the text above does not appear as a clickable link, you can visit the web address:
http://main.nationalmssociety.org/site/TR/Walk/MDMWalkEvents?px=1667819&pg=personal&fr_id=8842&s_tafId=72338

Click here to view the team page for Team Wench
If the text above does not appear as a clickable link, you can visit the web address:
http://main.nationalmssociety.org/site/TR/Walk/MDMWalkEvents?team_id=106773&pg=team&fr_id=8842&s_tafId=72338
 
 
17 April 2007 @ 02:56 pm
No purple hair, no shaves head, no threats, no begging...
With less than a week to go until the MS walk and less than half my goal reached due to other immediate priorities this year I am sitting here with newborn Gwen (the aforementioned immediate priority!) and reaffirming my commitment to ending this disease.
Please, if you have thought about donating, please do.
<http://www.nationalmssociety.org/site/tr?px=1667819&pg=personal&fr_id=2450&et=lds_yzmfgovx_2xbpfpi2g..&s_tafid=3504>
or
<http://tinyurl.com/25up6k>
Thank you!
 
 
29 September 2006 @ 05:57 pm
I have not posted in a while so lets just post a dandy little post

First off My manual dexterity is gone so the typeos are a plenty so get used to it and pull the words from the context.

Work... Ha.. As far as that goes I am nothing more than a disabled piece of shit to them. They are trying to scrape off the boot of the office. The Chief investigator who freely offers to assist us denied my request for assistance after sitting on my request for a month under the guise it had been routed to his "Junk" email bin. After an email war, I forwarded his insulting emails to the director of the building. He then basically sent me an email stating. "Be prepared to discus this case upon your return to the office"

So on Friday the 22nd at 6:30 The Chief Investigator gets to the office and asks me if anyone is the the Morgue. I said no one is and he Said Ok well lets talk about this. I ask if I should have a union rep. He says "No, its not a diciplinary action" the door shuts and he slams his hands down and starts rant and rave, cuss me and I can do nothing. I am frozen. Stunned. He looks at me and asks me if i am to DISABLED by my job on 3rd shift to do my job, if I am unable to function as an investigator. He kept using the word DISABLED over and over and then he said "FOR ME NOT TO ACT LIKE A F***ING STUPID A**" I exploded at this point I said What did you say? He attempted to rephrase I said that is not what you said and he then repeated what he said, I then whent off and showed him examples of things I have done that were "out of my job description" that I had done without being asked. He then said If i tell you to do it you will do it end of story. I said that is why I wanted a witness here for this crap. Then someone walked in. He stoped talking like someone turned him off. He simply said I want you clocked out at 7 and out of the building.


So I clocked out and was on my way out when he called me back into his office. I took a union rep and he started to grill me again. This time I got him to admit that he told "NOT TO ACT LIKE A F***ING STUPID A**"

So Now Here is where I sit. I am either turning into a sissy or becomming weak. I honestly belive I have PTSD (Post Traumatic Stress Disorder) As I type this I am shaking violently (Like I am shivering), my heart is racing like crazy, I am red faced and i an breathing like I ran a marathon. I hate the fact that I let someone get to me like that but I have. My fight or flight has kicked it and it seems as if my mind has choosed flight. I am at home. He has threatened my livleyhood and my benifits. I have called for my Employee assistance program benifits (Mental health) per union requirements as well as Workers Comp, Filing for workers comp (On the job/wilful injury) Called off work for a week (till the EAP appointment) made a Dr appointment for tommrow for some help ( I need some help to calm me down this shaking is driving me nuts).

Also I am filing grivences for Hostile work environment, discrimination and unfair labor practice.Unfortunately I do not have the monet to hire a a lawyer to fight them or to su ethen for discrimination but what else can I do?

I am also searching to see whom else we can get involved to stir the pot

The Coroner is a politician

I am the investigator with the most experinece and seniority an dtreated the worst, you figure it out!
And advice is welcomed...

Jason
 
 
16 July 2006 @ 01:28 am

Nearly 700 lab animals die after power outage

Mice, rats, rabbit succumb to 105-degree temps in Ohio State facility

Updated: 9:26 p.m. ET July 15, 2006

COLUMBUS, Ohio - Hundreds of laboratory mice and rats died when a power outage at Ohio State University produced sent room temperatures soaring as high as 105 degrees, the school said.

Power in six buildings on the medical campus went out Wednesday evening when an electrical generator failed. In one building, 598 mice, 90 rats and one rabbit died.

A second generator was offline because of a renovation project, so there was no backup, university research official Douglas Kniss said. When power was restored, the heat came on in some areas, he said.


“Temperature ranges went from the 80s in a couple of rooms to as high as 105 in one room,” Kniss said.

About 21 projects involving research into epilepsy, multiple sclerosis, cancer and cardiovascular disease were affected, Kniss said. Some researchers had been working on their projects for years, he said.

© 2006 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.
 
 
22 April 2006 @ 01:18 pm
You're in the doctor's office for a check up. He asks you to read the eye chart, but some letters are a bit blurry to you. You think "no big deal", since your vision has been getting more and more blurry over the years. Your doc recommends you see and optometrist where you get fitted for a pair of glasses. You spend hours trying to figure out which pair is right for you, but in the end you SETTLE for the least offensive pair. You spend days avoiding wearing them as much as you can, cause you hate the way they make you look. Over time you find yourself forced to wear them more and more because it's better than walking around in a blurry world all day. After some time passes, you realize, that the world looks much different...better than ever. You accept the fact that as long as you wear those ugly glasses, you are able to see things much more clearly. Yes it sucks that you are going to have to wear them the rest of your life, but at least you will have a clear view of everything in your life. You will be better able to see where you are going.

Well, MS is kind of like that. Yes it's ugly and you will have to deal with it the rest of your life, but at least it has made you look at life in a different light.

Sometimes, it's not about what you're looking at...but all about how you see it.
 
 
 
15 April 2006 @ 12:44 pm
Here's another possibility. I was thinking back to my former home in the SF Bay Area and specifically to the time Chloramine was introduced into our drinking water. Feb 2004 was when this happened and I remember my daughter's fish floating in its bowl the next day after a water change. My daughter followed the usual steps in changing water by letting it sit overnight so the Chlorine would evaporate. I felt bad because we had already revived the fish a few months earlier because my daughter had failed to take take of the water. Well, a few days later a friend was telling that it's because of the switch from Chlorine to Chloramine that killed the fish. It turns out that unlike Chlorine, Chloramine does NOT evaporate...oh well.

NOT QUITE.

I recently was think about my health over the last couple of years...I had been quite healthy all my life. I had not had the flu or even a real cold in five or six years prior to March 2004. My health...and life, really changed back in March 04. I got really sick and I thought it was a bad case of the flu, it was pretty nasty and lasted for nearly a month. I wrote it off to just a nasty flu that was going around and thought maybe it hit me harder than most people as a sort of "pay back" for not being sick the previous several years. Over the next several months I had two more bouts with the flu or a cold. Then Jan 2005 rolled around and I thought I was getting another dose of the flu...but this time something seemed different. I had typical symptoms, except I couldn't manage to redume my fever and I had this horrible (lower) back ache. I followed the advice of my wife and went to the hospital (Kaiser) urgent care. I spoke with the doctor of the day and he said it was the flu...cause I was "the 11th person he saw today" with flu symptoms. Ok, but I told him I wanted to be sure I didn't have some sort of secondary infection, yet he maintained it was nothing more than the flu. After I got home I read up on the symptoms and found another alternative to the flu and went back to Kaiser, but a different facility. Yup, after urinalysis test, I was told I had a UTI....rather odd, but ok. FAST FORWARD...i have been dealing with a variety of off and on issues from the crotch down since the UTI (numbness, tingling, urinary urgency and frequency, erection problems)

Then came March of this year and my diagnosis of MS. Ok, not happy about this because I can't grasp why I would have something like this...I don't fit the profile in any way. I keep searching for a cause and this time I found another potential link to my MS. Chloramine. Yes, could be a coincidence, but not really...not when you consider other things relating to my life prior to the introduction of Chloramine in my drinking water. I don't know, but I'll keep it as a possible "initial trigger for MS". It is possible that I had some sort of predisposition to MS as we all could have, but it's also possible that Chloramine had something to do with the activation of MY MS. Think about yourself and your health before your diagnosis of MS and compare it to the arrival of Chloramine in your water. Look up Chloramine...a mix of Chlorine and Ammonia. http://en.wikipedia.org/wiki/Chloramine
 
 
So I posted the alcohol survey in the MS forum of BrainTalk Communities last night. The response was quick and negative as you can see by following this link: http://brain.hastypastry.net/forums/showthread.php?t=126063. As you can see I was quickly banned. This is not the first time I have encountered people who seem irrational in their paranoia/fear. I would think that when you encounter people who share a common misfortune, that they would be more understanding...or at least somewhat interested in why they share the misfortune. I guess some people just like being victims, it must give them a sens of being SPECIAL or something. They want to retreat into their own little closed off worlds and just accept defeat. I guess that might explain, to some degree, why the medical and research communities have put almost all their efforts in treatment and not in cause. Why should they care about anything else when so many people with MS don't seem to care.

Well I care and I say YELL and SCREAM! at the experts, let them know that WE WANT TO FUCKING KNOW WHY WE HAVE THIS FUCKING DISEASE! We want to know because we have to be able to tell our friends and family...because we have to tell our children that we DON'T FUCKING KNOW if they will get it too or what they can do to prevent themselves from getting it. I don't know about you, but I DON'T WANT TO DIE A FUCKING SILENT DEATH!

There I feel a bit better ;) and thanks for listening. Feel free to tell me if you think I'm full of shit or if you might agree at least a little bit.
 
 
27 March 2006 @ 07:59 pm
Please reply with your answers: (Format your answers as A1, A2, A3, etc)


Q1: Have you been diagnosed with MS
(If you answer NO to this question the only respond to Q2 (ignoring the part about being diagnosed) and Q3))


Q2: Prior to being diagnosed with MS, how many days per week did you consume alcoholic beverages


Q3: On the days that you did consume alcoholic beverages, on average, how many beverages did you consume
(none, 1 to 2, 3-5, 6-10, 10 or more)



Q4: When were you diagnosed with MS (Month/Year)


Q5: Do you remeber your first symptom that could be traced back to MS


Q6: Do you remember the day/night before your first symptom


Q7: How may alcoholic beverages did you have thet day/night
(none, 1 to 2, 3-5, 6-10, 10 or more)


Thank you for your participation.

The totals should be obvious at some point, but I will post final numbers. I will also be doing this on a number of other boards and will post all data when I have it.
 
 
25 January 2010 @ 10:16 pm
So this community is about one thing and one thing only...understanding what causes MS. I believe that everyone with MS has something in common, and the trick is to figure out what that could be. It may be just one thing or several things, the only way we can ever know what that commonality might be, is through the careful examination of our backgrounds.
 
 
25 March 2006 @ 11:32 am
The night before my first and current MS attack, I had been drinking. I had consumed quite a bit of alcohol, prob equivalent to 10 drinks. I did an informal survey in another MS related community about drinking and smoking. I had a number of responses but in two cases, the individuals volunteered additional information...specifically that they had been drinking the night before their first attack. Also included was one woman's father who also had MS and had been drinking the night before he had his first attack. So, four people with MS and all four had been drinking the night before their attack.

Consider this: alcohol is a toxin and it is absorbed and delivered to your brain through the blood stream. The effects of the alcohol are clearly felt on your CNS: Leading to slurred speech, stumbling, dizziness, vision problems, cognitive malfunctions, numbness, and in extreme cases, bladder and bowel problems. Now doesn't this sound alot like symptoms of MS, sure it does.

So, can it be that alcohol damages the myelin in a way that may cause your immune system to mistakenly treat it as an invader and attack it. My thought on this is that the myelin which is made up of protein and fatty substances may absorb too much alcohol for whatever reason. So if you can imagine pockets of myelin swollen up with alcohol, a toxin, it would be easy to understand how the immune system could see this pocket of myelin as a threat to your system. Just a thought.

Alcohol can damage the lining (myelin sheath) of nerves in the brain.....http://www.merck.com/mmhe/sec07/ch108/ch108b.html